Correlation between resilience and social support in mothers of young children with autism. Polish perspective

Authors

  • Aleksandra A. Buchholz Academy of Physical Education, Warsaw

Keywords:

parents of autistic children, coping, psychological resilience, support

Abstract

Background
The aim of the study was to analyse the relationship between the level of resilience and the perceived social support, primarily emotional and instrumental varieties, among mothers of children with autistic spectrum disorder (ASD).
Participants and procedure
The study involved 143 individuals aged 26-51 years (M = 38.41, SD = 5.02), mothers of children with ASD. The Berlin Social Support Scales and the Resilience Scale were used as data collection tools.
Results
There were statistically significant positive correlations between the perceived emotional and instrumental support and all the dimensions of psychological resilience.
Conclusions
The results are consistent with other results presented in a similar area, but the specific context of this study should be considered – in Poland, the medical model of disability still plays a dominant role, which means that little consideration is given to the needs and problems of families raising a child with disabilities.

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References

Al-Kandari, S., Alsalem, A., Abohaimed, S., Al-Orf, F., Al-Zoubi, M., Al-Sabah, R., & Shah, N. (2017). Brief report: Social support and coping strategies of mothers of children suffering from ASD in Kuwait. Journal of Autism and Developmental Disorders, 47, 3311–3319. https://doi.org/10.1007/s10803-017-3225-y.

APA (2013). Diagnostic and statistical manual of mental disorders (DSM-5). American Psychiatric Association.

Armstrong, T. (2011). The power of neurodiversity: Unleashing the advantages of your differently wired brain. DeCapo Press Books.

Bakalarczyk, R. (2015). Polityka wsparcia rodzin z osobami niepełnosprawnymi. W cieniu wyroków Trybunału Konstytucyjnego RP i protestów społecznych [Public support policy aimed at the disabled and their families. In the aftermath of the rulings of the Constitutional Tribunal and social protests]. Studia z Polityki Publicznej, 1, 63–80. https://doi.org/10.33119/KSzPP.2015.1.4.

Bayat, M. (2007). Evidence of resilience in families of children with autism. Journal of Intellectual Disability Research, 51, 702–714. https://doi.org/10.1111/j.1365-2788.2007.00960.x.

Benson, P. R., & Karlof, K. L. (2009). Anger, stress proliferation, and depressed mood among parents of children with ASD: a longitudinal replication. Journal of Autism and Developmental Disorders, 39, 350–362. https://doi.org/10.1007/s10803-008-0632-0.

Bishop, S. L., Richler, J., Cain, A. C., & Lord, C. (2007). Predictors of perceived negative impact in mothers of children with autism spectrum disorders. American Journal of Mental Retardation, 112, 450–461. https://doi.org/10.1352/0895- 8017(2007)112[450:POPNII]2.0.CO;2.

Bolger, N., Zuckerman, A., & Kessler, R. C. (2000). Invisible support and adjustment to stress. Journal of Personality and Social Psychology, 79, 953–961. https://doi.org/10.1037//0022-3514.79.6.953.

Bromley, J., Hare, D. J., Davison, K., & Emerson, E. (2004). Mothers supporting autistic spectrum disorders: Social support, mental health status, and satisfaction with services. Autism, 8, 409–423. https://doi.org/10.1177/.

Brose, A., Scheibe, S., & Schmiedek, F. (2013). Life contexts make a difference: Emotional stability in younger and older adults. Psychology and Aging, 28, 148–159. https://doi.org/10.1037/a0030047.

Buchholz, A., & Ilnicka, J. (2018). Ośrodek wczesnej interwencji jako miejsce wsparcia dla dzieci z niepełnosprawnościami i ich rodziców [Early intervention center as a place of support for children with disabilities and their parents]. Język, Głos, Komunikacja, 5, 75–89. https://doi.org/10.15584/978-83-7996-582-3_6.

Cantwell, J., Muldoon, O., & Gallagher, S. (2015). The influence of self-esteem and social support on the relationship between stigma and depresive symptomology in parents caring for children with intellectual disabilities. Journal of Intellectual Disability Research, 59, 948–957. https://doi. org/10.1111/jir.12205.

Catalano, D., Holloway, L., & Mpofu, E. (2018). Mental health interventions for parent carers of children with autistic spectrum disorder: Practice guidelines from a critical interpretive synthesis (CIS) systematic review. International Journal of Environmental Research and Public Health, 15, 341. https://doi.org/10.3390/ijerph1502034.1.

CBOS (2021). Społeczny obraz autyzmu. Raport z badań ilościowych zrealizowanych przez fundację CBOS dla fundacji Jim [The social image of autism. Report on quantitative research carried out by the CBOS Foundation for the Jim Foundation]. CBOS.

Cicchetti, D. (2013). Annual research review: Resilient functioning in maltreated children – past, present, and future perspectives. Journal of Child Psychology and Psychiatry, 54, 402–422. https://doi.org/10.1111/j.1469-7610.2012.02608.x.

Cunningham, M. R., & Barbee, A. P. (2000). Social support. In C. Hendrick & S. S. Hendrick (Eds.), Close relationships: a sourcebook (pp. 272–285). Sage.

de Schipper, E. J., Riksen-Walraven, J. M., Geurts, S. A. E., & Derksen, J. J. L. (2008). General mood of professional caregivers in child care centers and the quality of caregiver-child interactions. Journal of Research in Personality, 42, 515–526. https://doi.org/10.1016/j.jrp.2007.07.009.

De Wolfe, J. (2014). Parents of children with autism. An ethnography. Palgrave Macmillan.

Ekas, N. V., Lickenbrock, D. M., & Whitman, T. L. (2010). Optimism, social support, and well-being in mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 40, 1274–1284. https://doi.org/10.1007/s10803-010-0986-y.

Estes, A., Olson, E., Sullivan, K., Greenson, J., Winter, J., Dawson, G., & Munson, J. (2013). Parentingrelated stress and psychological distress in mothers of toddlers with autism spectrum disorders. Brain and Development, 35, 133–138. https://doi.org/10.1016/j.braindev.2012.10.004.

Fowler, J. H., & Christakis, N. A. (2008). Dynamic spread of happiness in a large social network: Longitudinal analysis over 20 years in the Framingham Heart Study. BMJ, 337, a2338. https://doi.org/10.1136/bmj.a2338.

Gąciarz, B. (2014). Model społeczny niepełnosprawności jako podstawa zmian w polityce społecznej [The social model of disability as a basis for changes in social policy]. In B. Gąciarz & S. Rudnicki (Eds.), Polscy niepełnosprawni. Od kompleksowej diagnozy do nowego modelu polityki społecznej [Polish disabled. From a comprehensive diagnosis to a new model of social policy] (pp. 17–44). Wydawnictwo AGH.

Green, B. L., & Rodgers, A. (2001). Determinants of social support among low-income mothers: a longitudinal analysis. American Journal of Community Psychology, 29, 419–441. https://doi.org/10.1023/A:1010371830131.

Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: a meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43, 629–642. https://doi.org/10.1007/s10803-012-1604-y.

Hidalgo, N. J., McIntyre, L. L., & McWhirter, E. H. (2015). Sociodemographic differences in parental satisfaction with an autism spectrum disorder diagnosis. Journal of Intellectual and Developmental Disability, 40, 147–155. https://doi.org/10.3109/13668250.2014.994171.

Horton, T. V., & Wallander, J. L. (2001). Hope and social support as resilience factors against psychological distress of mothers who care for children with chronic physical conditions. Rehabilitation Psychology, 46, 382–399. https://doi.org/10.1037/0090-5550.46.4.382.

Hrdlicka, M., Vacova, M., Oslejskova, H., Gondzova, V., Vadlejchova, I., Kocourkova, J., Koutek, J., & Dudova, I. (2016). Age at diagnosis of autism spectrum disorders: Is there an association with socioeconomic status and family self-education about autism? Neuropsychiatric Disease and Treatment, 12, 1639–1644. https://doi.org/10.2147/NDT.S107239.

Jalilianhasanpour, R., Williams, B., Gilman, I., Burke, M. J., Glass, S., Fricchione, G. L., Keshavan, M. S., LaFrance Jr, W. C., & Perez, D. L. (2018). Resilience linked to personality dimensions, alexithymia and affective symptoms in motor functional neurological disorders. Journal of Psychosomatic Research, 107, 55–61. https://doi.org/10.1016/j.jpsychores.2018.02.005.

Jiménez, M. G., Montorio, I., & Izal, M. (2017). The association of age, sense of control, optimism, and self-esteem with emotional distress. Developmental Psychology, 53, 1398–1403. https://doi.org/10.1037/dev0000341.

Kapp, L., & Brown, O. (2011). Resilience in families adapting to autism spectrum disorder. Journal of Psychology in Africa, 21, 459–464. https://doi.org/ 10.1080/14330237.2011.10820482.

Kasprzak, A., Basińska, M. A., & Lewandowska, P. (2013). Resiliency and the subjective evaluation of health in mothers of children with Asperger’s syndrome. Health Psychology Report, 1, 34–41. https://doi.org/10.5114/hpr.2013.40467.

Kavaliotis, P. (2017). Resilience of parents with a child with autism spectrum disorders and factors for its potential enhancement: Family income and educational level. Journal of Educational and Developmental Psychology, 7, 188–199. https://doi.org/10.5539/jedp.v7n1p188.

Kayfitz, A. D., Gragg, M. N., & Orr, R. R. (2010). Positive experiences of mothers and fathers of individuals with autism. Journal of Applied Research in Intellectual Disabilities, 23, 337–343. https://doi.org/10.1111/j.1468-3148.2009.00539.x.

Khan, M. A., Kamran, R., & Ashraf, S. (2017). Resilience, perceived social support and locus of control in mothers of children with autism vs. those having normal children. Pakistan Journal of Professional Psychology: Research and Practice, 8, 1–13.

Kowalczyk, O. (2016). Jaka polityka społeczna wobec rodzin z osobami niepełnosprawnymi w Polsce? [What should be social policy towards families with disabled persons in Poland?]. Prace Naukowe Uniwersytetu Ekonomicznego we Wrocławiu, 438, 166–179. https://doi.org/10.15611/pn.2016.438.10.

Kryla-Lighthall, N., & Mather, M. (2009). The role of cognitive control in older adults’ emotional wellbeing. In V. L. Bengston, D. Gans, N. M. Pulney, & M. Silverstein (Eds.), Handbook of theories of aging (pp. 323–344). Springer.

Lee, I., Lee, E. O., Kim, H. S., Park, Y. S., Song, M., & Park, Y. H. (2004). Concept development of family resilience: a study of Korean families with a chronically ill child. Journal of Clinical Nursing, 13, 636–645. https://doi.org/10.1111/j.1365-2702.2004.00845.x.

Leone, E., Dorstyn, D., & Ward, L. (2016). Defining resilience in families living with neurodevelopmental disorder: a preliminary examination of Walsh’s framework. Journal of Developmental and Physical Disabilities, 28, 595–608. https://doi.org/10.1007/s10882-016-9497-x.

Letzring, T. D., Block, J., & Funder, D. C. (2005). Egocontrol and ego-resiliency: Generalization of selfreport scales based on personality descriptions from acquaintances, clinicians, and the self. Journal of Research in Personality, 39, 395–422. https:// doi.org/10.1016/j.jrp.2004.06.003.

Levine, K. A. (2009). Against all odds: Resilience in single mothers of children with disabilities. Social Work in Health Care, 48, 402–419. https://doi.org/10.1080/00981380802605781.

Lipiec, O., & Setkowicz, Z. (2017). Rola diety w leczeniu chorób neurodegeneracyjnych [The role of diet in the treatment of neurodegenerative diseases]. Wszechśwat, 118, 22–27.

Lu, M. H., Wang, G. H., Lei, H., Shi, M. L., Zhu, R., & Jiang, F. (2018). Social support as mediator and moderator of the relationship between parenting stress and life satisfaction among the Chinese parents of children with ASD. Journal of Autism and Developmental Disorders, 48, 1181–1188. https://doi.org/10.1007/s10803-017-3448-y.

Łuszczyńska, A., Kowalska, M., Mazurkiewicz, M., & Schwarzer, R. (2006). Berlińskie Skale Wsparcia Społecznego (BSSS). Wyniki wstępnych badań nad adaptacją skal i ich własnościami psychometrycznymi [Berlin Social Support Scales (BSSS). Results of preliminary research on the adaptation of scales and their psychometric properties]. Studia Psychologiczne, 44, 17–27.

Maier, S. F., & Seligman, M. E. (1976). Learned helplessness: Theory and evidence. Journal of Experimental Psychology: General, 105, 3–46. https://doi. org/10.1016/S0079-7421(08)60083-3.

Manohar, H., Kandasamy, P., Chandrasekaran, V., & Rajkumar, R. P. (2019). Early diagnosis and intervention for autism spectrum disorder: Need for pediatrician-child psychiatrist liaison. Indian Journal of Psychological Medicine, 41, 87–90. https://doi.org/10.4103/IJPSYM.IJPSYM_154_18.

Marsack, C., N., & Samuel, P. S. (2017). Mediating effects of social support on quality of life for parents of adults with autism. Journal of Autism and Developmental Disorders, 47, 2378–2389. https://doi.org/10.1007/s10803-017-3157-6.

Mathew, N. E., Burton, K., Schierbeek, A., Črnčec, R., Walter, A., & Eapen, V. (2019). Parenting preschoolers with autism: Socioeconomic influences on wellbeing and sense of competence. World Journal of Psychiatry, 9, 30–46. https://doi.org/10.5498/wjp.v9.i2.30.

McCarthy, J. (2008). Mother warriors: a nation of parents healing autism against all odds. Dutton.

Mirski, A., & Mirska-Tomasz, N. (2018). ADHD i choroba Aspergera a wykluczenie społeczne [ADHD and Asperger’s disease and social exclusion]. Państwo i Społeczeństwo, 18, 33–52.

Mishra, R., & Sreedevi, P. (2016). Parental perceptions towards their autistic children. Journal of Community Guidance and Research, 33, 454–460. https://doi.org/10.1177/1088357615610547.

Nachinaab, J. O., Yirenkyi, A., & Kumah, E. N. M. (2019). Parents’ socio-economic status as determinants of young adults’ educational attainment in Ayeduase, Kumasi. International Journal of Innovative Research and Advanced Studies, 6, 123–133.

Neubauer, A. B., Smyth, J. M., & Sliwinski, M. J. (2019). Age differences in proactive coping with minor hassles in daily life. The Journals of Gerontology: Series B, 74, 7–16. https://doi.org/10.1093/geronb/gby061.

Ogińska-Bulik, N., & Juczyński, Z. (2008). Skala pomiaru prężności – SPP-25 [The Resilience Scale – SPP-25]. Nowiny Psychologiczne, 3, 39–55.

Oshio, A., Taku, K., Hirano, M., & Saeed, G. (2018). Resilience and Big Five personality traits: a metaanalysis. Personality and Individual Differences, 127, 54–60. https://doi.org/10.1016/j.paid.2018.01.048.

Peer, J. W., & Hillman, S. B. (2014). Stress and resilience for parents of children with intellectual and developmental disabilities: a review of key factors and recommendations for practitioners. Journal of Policy and Practice in Intellectual Disabilities, 11, 92–98. https://doi.org/10.1111/jppi.12072.

Pepperell, T. A., Paynter, J., & Gilmore, L. (2018). Social support and coping strategies of parents raising a child with autism spectrum disorder. Early Child Development and Care, 188, 1392–1404. https://doi.org/10.1080/03004430.2016.1261338.

Pottie, C. G., Cohen, J., & Ingram, K. M. (2009). Parenting a child with autism: Contextual factors associated with enhanced daily parental mood. Journal of Pediatric Psychology, 34, 419–429. https://doi.org/10.1093/jpepsy/jsn094.

Reis, H. T. (2001). Relationship experiences and emotional well-being. In C. D. Ryff & B. H. Singer (Eds.), Emotion, social relationships and health (pp. 57–86). Oxford University Press.

Riany, Y. E., Cuskelly, M., & Meredith, P. (2019). Parenting style among Indonesian parents of a child with autism spectrum disorder: Associations with socioeconomic status and social supports. Journal of Developmental and Physical Disabilities, 31, 267–283. https://doi.org/10.1007/s10882-018-9638-5.

Robinson, S., & Weiss, J. A. (2020). Examining the relationship between social support and stress for parents of individuals with autism. Research in Autism Spectrum Disorders, 74, 1–10. https://doi.org/10.1016/j.rasd.2020.101557.

Rubenstein, E., Durkin, M. S., Harrington, R. A., Kirby, R. S., Schieve, L. A., & Daniels, J. (2018). Relationship between advanced maternal age and timing of first developmental evaluation in children with autism. Journal of Developmental and Behavioral Pediatrics, 39, 601–609. https://doi.org/10.1097/DBP.0000000000000601.

Ruiz-Robledillo, N., De Andres-Garcıa, S., Perez-Blasco, J., Gonzalez-Bono, E., & Moya-Albiol, L. (2014). Highly resilient coping entails better perceived health, high social support and low morning cortisol levels in parents of children with autism spectrum disorder. Research in Developmental Disabilities, 35, 686–695. https://doi.org/10.1016/j.ridd.2013.12.007.

Salas, B. L., Rodríguez, V. Y., Urbieta, C. T., & Cuadrado, E. (2017). The role of coping strategies and self-efficacy as predictors of life satisfaction in a sample of parents of children with autism spectrum disorder. Psicothema, 29, 55–60. https://doi.org/10.7334/psicothema2016.96.

Sankey, C., Derguy, C., Clément, C., Ilg, J., & Cappe, E. (2019). Supporting parents of a child with autism spectrum disorder: the French awakening. Journal of Autism and Developmental Disorders, 49, 1142– 1153. https://doi.org/10.1007/s10803-018-3800-x.

Schwaba, T., Robins, R. W., Sanghavi, P. H., & Bleidorn, W. (2019). Optimism development across adulthood and associations with positive and negative life events. Social Psychological and Personality Science, 10, 1092–1101. https://doi.org/10.1177/1948550619832023.

Sekułowicz, M., & Kaczmarek, E. (2014). Ścieżki radzenia sobie matek dzieci z autyzmem – pomiędzy wypaleniem a prężnością [Coping paths for mothers of autistic children – between burnout and resilience]. Niepełnosprawność. Dyskursy Pedagogiki Specjalnej, 13, 9–23.

Sheldon, K. M., & Kasser, T. (2001). Getting older, getting better? Personal strivings and psychological maturity across the life span. Developmental Psychology, 37, 491–501. https://doi.org/10.1037/0012-1649.37.4.491.

Silberman, S. (2015). Neurotribes: The legacy of autism and the future of neurodiversity. Penguin.

Southwick, S. M., Sippel, L., Krystal, J., Charney, D., Mayes, L., & Pietrzak, R. H. (2016). Why are some individuals more resilient than others: The role of social support. World Psychiatry, 15, 77–79. https://doi.org/10.1002/wps.20282.

Southwick, S. M., & Charney, D. S. (2012). Resilience: The science of mastering life’s greatest challenges. Cambridge University Press.

Suzuki, K., Kobayashi, T., Moriyama, K., Kaga, M., Hiratani, M., Watanabe, K., Yamashita, Y., Hayashi, T., & Inagaki, M. (2015). Parenting resilience for rearing a child with autism spectrum disorder: a qualitative study. Brain and Development, 47, 283–288.

Thoits, P. A. (2011). Mechanisms linking social ties and support to physical and mental health. Journal of Health and Social Behavior, 52, 145–161. https://doi.org/10.1177/0022146510395592.

Twardowski, A. (1999). Sytuacja rodzin dzieci niepełnosprawnych [The situation of families of disabled children]. In I. Obuchowska (Ed.), Dziecko niepełnosprawne w rodzinie [Disabled child in the family] (pp. 18–57). WSiP.

van Steijn, D., Oerlemans, A. M., van Aken, M., Buitelaar, J., & Rommelse, N. (2014). The reciprocal relationship of ASD, ADHD, depressive symptoms and stress in parents of children with ASD and/ or ADHD. Journal of Autism and Developmental Disorders, 44, 1064–1076. https://doi.org/10.1007/s10803-013-1958-9.

Walsh, F. (2006). Strengthening family resilience. The Guilford Press. Werner, S., & Shulman, C. (2015). Does type of disability make a difference in affiliate stigma among family caregivers of individuals with autism, intellectual disability or physical disability? Journal of Intellectual Disability Research, 59, 272–283. https://doi.org/10.1111/jir.12136.

Yang, C. H., Du, Y. S., Gong, Y., Liu, W. W., & Kutcher, S. (2016). Depressive symptoms and their correlates in parents of children with autism spectrum disorders. International Journal of Clinical and Experimental Medicine, 9, 5135–5143.

Zablotsky, B., Bradshaw, C. P., & Stuart, E. A. (2013). The association between mental health, stress, and coping supports in mothers of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 43,1380–1393. https://doi.org/10.1007/s10803-012-1693-7.

Zarbo, C., Compare, A., Melli, S., & Grossi, E. (2016). Psychological interventions to reduce distress and improve quality of life in families with autistic children In A. Compare, C. Elia, A. G. Simonelli, & F. Cattafi (Eds.), Psychological distress (pp. 115– 127). Nova Science Publisher.

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Published

2023-03-28

How to Cite

Buchholz, A. A. (2023). Correlation between resilience and social support in mothers of young children with autism. Polish perspective. Health Psychology Report, 11(1), 10–21. Retrieved from https://czasopisma.bg.ug.edu.pl/index.php/HPR/article/view/8188

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