Depression in mothers and fathers of persons with Down Syndrome with moderate and severe intellectual disability in the family cycle
Keywords:
Down syndrome, mild intellectual disability, family life cycle, family with a person with intellectual disability, depression of parents of intellectually disabled personsAbstract
The main objective of the following researches was an attempt to find an answer to question whether parents of people with mild intellectual disability suffer from depression and in case the answer to that question was positive I attempted to measure the revealed level of experienced depression. Studies were conducted on the group of 120 parents of people with mild intellectual disability with Down syndrome. The outcomes of conducted researches confirmed the assumption regarding the occurrence of above mentioned illness, what is more the level of experienced negative emotions varied in regard to the age of intellectually disabled son or daughter, in another words the level of depression changed in regard to the phase of the family life cycle. Parents, who were in the first phase of family life cycle (parents of children from 30 months old to 6 years old) and parents form the last phase of family life cycle (aging parents) revealed moderated level of experienced depression, whereas parents from the second phase displayed mild level of depression, which in turn was hardly displayed in the group of parents with adult persons with Down syndrome.
Downloads
References
Abbeduto L., Seltzer M. M., Shattuck P, Krauss M.W., Orsmond G., Murphy M.M. (2004), Psychological Well-Being and Coping in Mothers of Youths With Autism, Down Syndrome, or Fragile X Syndrome, American Journal on Mental Retardation, 109(3): 237–254.
American Psychiatric Association (2013), Diagnostic and Statistical Manual of Mental Disorders (DSM-5), Fifth edition.
Annerèn G., Hedov G., Wikblad K. (2006), Sickness absence in Swedish parents of children with down’s syndrome: Relation to self-perceived health, stress and sense of coherence, Journal of Intellectual Disability Research, 50: 546–552.
Beck, A.T., Steer R.A., Brown G.K. (1996), Manual for the Beck, Depression Inventory-II, Psychological Corporation, San Antonio, Texas.
Carr J. (2006), Families of 30-35-years olds with Down`s syndrome, Journal of Applied Research in Intellectual Disabilities, 18: 75–84.
Cunningham C. C. (1996), Families of children with Down syndrome, Down Syndrome Research and Practice, 4(3): 87–95.
Duvall E.M., Miller B.C. (1985), Marriage and family development (6th ed.), Harper & Row, New York.
Ferguson G.A, Takane Y. (2007), Analiza statystyczna w psychologii i pedagogice, PWN, Warszawa.
Góralski A. (1987), Metody opisu i wnioskowania statystycznego w psychologii i pedagogice, PWN, Warszawa.
Hassall R., Rose, J., McDonald J. (2005), Parenting stress in mothers of children with an intellectual disability: The effects of parental cognitions in relation to child characteristics and family support, Journal of Intellectual Disability Research, 49: 405–418.
Hastings R.P., Kovshoff H., Ward J.N., Espinosa F., Brown T., Remington B. (2005), Systems analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism, Journal of Autism and Developmental Disorders, 35(5): 665−644.
Hedov G., Wikblad K., Annerén G. (2006), Sickness absence in Swedish parents of children with Down syndrome: Relation to self-perceived health, stress and sense of coherence, Journal of Intellectual Disability Research, 50: 546–552.
Hodapp R.M., Ly, T.M., Fidler D.J., Ricci L.A. (2001), Less stress, more rewarding: Parenting children with Down syndrome, Parenting, 1: 317–337.
Honig A.S., Keller D. (2004), Maternal and paternal stress in families with school-aged children with disabilities, American Journal of Orthopsychiatry, 74: 337–348.
Kościelska M. (1998), Trudne macierzyństwo, Wydawnictwo Szkolne i Pedagogiczne, Warszawa.
Kościelska M. (2011), Odpowiedzialni rodzice. Z doświadczeń psychologa, Oficyna Wydawnicza „Impuls”, Kraków.
Liberska H., Matuszewska M. (2012), Modele funkcjonowania rodziny z dzieckiem niepełnosprawnym, Polskie Forum Psychologiczne, 17(1): 79–90.
Olsson M.B., Hwang C.P. (2001), Depression in mothers and fathers of children with intellectual disability, Journal of Intellectual Disability Research, 45(6): 535–543.
Parnowski T, Jernajczyk W. (1977), Inwentarz Depresji Becka w ocenie nastroju osób zdrowych i chorych na choroby afektywne (ocena pilotażowa), Psychiatria Polska, 11: 417–425.
Pisula E. (2007), Rodzice i rodzeństwo dzieci z zaburzeniami rozwoju, Wydawnictwo UW, Warszawa.
Shapiro S.S.; Wilk M.B. (1965), An analysis of variance test for normality (complete samples), Biometrika, 52(3–4): 591–611, doi:10.1093/biomet/52.3 4.591. JSTOR 2333709 MR 0205384.
Stelter Ż. (2009), Dorastanie osób z niepełnosprawnością intelektualną, Wydawnictwo Scholar, Warszawa.
Stelter, Ż. (2013), Pełnienie ról rodzicielskich wobec dziecka niepełnosprawnego intelektualnie, Difin, Warszawa.
Stelter Ż. (2015), Poczucie sensu życia rodziców dzieci niepełnosprawnych intelektualnie, Diametros, 26: 91–110.
Świętochowski W. (2004), Proces chorowania w rodzinie, Acta Universitatis Lodziensis. Folia Psychologica, 8: 197–204.
Twardowski A. (1995), Sytuacja rodzin dzieci niepełnosprawnych [w:] Dziecko niepełnosprawne w rodzinie, red. I. Obuchowska, Wydawnictwo Szkolne i Pedagogiczne, Warszawa, 18–47.
Twardowski, A. (2012), Wczesne wspomaganie rozwoju dzieci z niepełnosprawnościami w środowisku rodzinnym, Wydawnictwo Naukowe UAM, Poznań.
Van Riper M, Ryff C, Pridham K. (1992), Parental and family well-being in families of children with Down's syndrome: A comparative study, Research in Nursing and Health, 15: 227–235.
Wasilewska M., Kuleta M. (2009), Obraz starości w kontekście relacji rodzinnych [w:] W poszukiwaniu jakości życia współczesnej rodziny polskiej, red. G. Makiełło-Jarża, Oficyna Wydawnicza AFM, Kraków, 131–140.
Wojciechowski F. (2007), Niepełnosprawność. Rodzina. Dorastanie, Wydawnictwo Akademickie „Żak”, Warszawa.
Yau M.K., Li-Tsang C.W.P. (1999), Adjustment and adaptation in parents of children with developmental disability in two-parent families: a review of the characteristics and attributes, The British Journal of Developmental Disabilities, 45(88): 38–51.
Yoong A., Koritsas S. (2012), The impact of caring for adults with intellectual disability on the quality of life of parents, Journal of Intellectual Disability Research, 56(6): 609–619.
Wielgosz E. (1995), Wychowanie dzieci niepełnosprawnych somatycznie [w:] Dziecko niepełnosprawne w rodzinie, red. I. Obuchowska,Wydawnictwo Szkolne i Pedagogiczne, Warszawa, 433–442.
Ziemska M. (2001), Zmiany w relacjach małżeńskich w cyklu życia rodziny [w:] Rodzina współczesna, red. M. Ziemska, PWN, Warszawa.