Academic Scientific JournalsThe necessity of research on the ageing of people with long-term acquired disability
Keywords:
long-term disability, aging, health, secondary health conditionsAbstract
Nowadays, the growing population of ageing people with long-term disabilities is a challenge for researchers and practitioners, as it constitutes a group with specific characteristics and needs resulting from the peculiarities of both phenomena. However, it is not a simple sum of their characteristics, but a complex and ambiguous conglomerate with unclear boundaries and conditions. Hence, the article focuses on discussing the characteristics of ageing in people with long-term acquired disabilities from the perspective of physical and psychosocial functioning. This perspective is the starting point for justifying the need for research on the phenomenon of ageing of people with long-term acquired disabilities.
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Adamczyk M. D. (2019), Społeczne uwarunkowania pomyślnego starzenia się i aktywnego przygotowania do emerytury, Wydawnictwo KUL, Lublin.
Bauman W.A., Spungen A. M. (1994), Disorders of carbohydrate and lipid metabolism in veterans with paraplegia or quadriplegia: A model of premature aging, „Metabolism: Clinical and Experimental”, 43(6), 749–756.
Bigby C. (2006), Ageing with a lifelong disability. A guide to practice, program and policy issues for human services professionals, Jessica Kingsley Publishers, London.
Bishop M. (2005), Quality of Life and Psychosocial Adaptation to Chronic Illness and Disability: Preliminary Analysis of a Conceptual and Theoretical Synthesis, „Rehabilitation Counseling Bulletin”, 48(4): 219–231.
Bloemen-Vrencken J.H.A., Post M.W.M., Hendriks J.M.S., De Reus E.C.E., De Witte L.P. (2005), Health problems of persons with spinal cord injury living in the Netherlands, „Disability and Rehabilitation”, 27(22): 1381–1389.
Błachnio A. (2019), Potencjał osób w starości: Poczucie jakości życia w procesie starzenia się, Wydawnictwo Uniwersytetu Kazimierza Wielkiego, Bydgoszcz.
Byczewska-Konieczny K. (2017), Jak starzeje się umysł?: O funkcjonowaniu poznawczym osób starszych i jego zróżnicowaniu indywidualnym, Wydawnictwo Uniwersytetu Jagiellońskiego, Kraków.
Byra S. (2014), Konstytutywne cechy starzenia się osób z długotrwałą niepełnosprawnością ruchową [w:] Współczesne oblicza pomocy społecznej i pracy socjalnej, M. Czechowska-Bieluga, A. Kanios (red.), Wydawnictwo Uniwersytetu Marii Curie-Skłodowskiej, Lublin.
Byra S. (2016), Posttraumatic growth in people with traumatic long-term spinal cord injury: Predictive role of basic hope and coping, „Spinal Cord”, 54(6): 478–482.
Byra S., Duda M. (2019), Postrzeganie własnej autonomii a satysfakcja z życia u osób z nabytą niepełnosprawnością ruchową, „Człowiek – Niepełnosprawność – Społeczeństwo”, 45(3): 17–36.
Chabior A. (2017), Wspomaganie procesu pomyślnego starzenia się u ludzi starych: Między powinnością a profesją, Oficyna Wydawnicza „Impuls”, Kraków.
Chan L., Shumway-Cook A., Yorkston K.M., Ciol M.A., Dudgeon B.J., Hoffman J.M. (2005), Design and validation of a methodology using the International Classification of Diseases, 9th Revision, to identify secondary conditions in people with disabilities, „Archives of Physical Medicine and Rehabilitation”, 86(5): 1065–1069.
Cook K. F., Molton I.R., Jensen M.P. (2011), Fatigue and aging with a disability, „Archives of Physical Medicine and Rehabilitation”, 92(7): 1126–1133.
Coyle C. E., Putnam M. (2017), Identifying adults aging with disability using existing data: The case of the Health and Retirement Study, „Disability and Health Journal”, 10(4): 611–615.
Dashner J., Espin-Tello S.M., Snyder M., Hollingsworth H., Keglovits M., Campbell M.L., Putnam M., Stark S. (2019), Examination of Community Participation of Adults With Disabilities: Comparing Age and Disability Onset, „Journal of Aging and Health”, 31(10_suppl): 169S-194S.
De-Rosende Celeiro I., Santos-Del-Riego S., Muñiz García J. (2017), Homebound status among middle-aged and older adults with disabilities in ADLs and its associations with clinical, functional, and environmental factors, „Disability and Health Journal”, 10(1): 145–151.
Duda M. (2020), Wtórne komplikacje zdrowotne w badaniach nad niepełnosprawnością, „Niepełnosprawność. Dyskursy Pedagogiki Specjalnej”, 38: 52–63.
Flores G., Ingenhaag M., Maurer J. (2015), An anatomy of old-age disability: Time use, affect and experienced utility, „Journal of Health Economics”, 44: 150–160.
Franco O.H., Karnik K., Osborne G., Ordovas J.M., Catt M., van der Ouderaa F. (2009), Changing course in ageing research: The healthy ageing phenotype, „Maturitas”, 63(1): 13–19.
Freedman V.A. (2009), Adopting the ICF language for studying late-life disability: A field of dreams?, „The Journals of Gerontology. Series A, Biological Sciences and Medical Sciences”, 64(11): 1172–1176.
Freedman V.A. (2014), Research Gaps in the Demography of Aging with Disability, „Disability and health journal”, 7(1 Suppl): S60–S63.
Gladyshev T.V., Gladyshev V.N. (2016), A Disease or not a Disease? Aging as a Pathology, „Trends in molecular medicine”, 22(12): 995–996.
Gray D.B., Hollingsworth H.H., Stark S., Morgan K.A. (2008), A subjective measure of environmental facilitators and barriers to participation for people with mobility limitations, „Disability and Rehabilitation”, 30(6): 434–457.
Groah S.L., Charlifue S., Tate D., Jensen M.P., Molton I.R., Forchheimer M., Krause J.S., Lammertse D.P., Campbell M. (2012), Spinal cord injury and aging: Challenges and recommendations for future research, „American Journal of Physical Medicine & Rehabilitation”, 91(1): 80–93.
Hahn J.E., Aronow H.U., Rosario E.R., Guenther N. (2013), Multidimensional health risk appraisal among adults aging with acquired disabilities, „Disability and Health Journal”, 6(3): 195–203.
Hilberink S.R., van der Slot W.M.A., Klem M. (2017), Health and participation problems in older adults with long-term disability, „Disability and Health Journal”, 10(2): 361–366.
Jensen M.P., Truitt A. R., Schomer K.G., Yorkston K.M., Baylor C., Molton I.R. (2013), Frequency and age effects of secondary health conditions in individuals with spinal cord injury: A scoping review, „Spinal Cord”, 51(12): 882–892.
Jeppsson-Grassman E. (2013), Time, age and the failing body: A long life with disability, [w:] Ageing with Disability: A Lifecourse Perspective, E. Jeppsson-Grassman, A. Whitaker (red.), Policy Press, Bristol.
Jeppsson-Grassman E., Whitaker A. (2013), Ageing with disability: An introduction [w:] Ageing with Disability: A Lifecourse Perspective, E. Jeppsson-Grassman, A. Whitaker (red.), Policy Press, Bristol. Jeppsson-Grassman E., Whitaker A., Taghizadeh Larsson A. (2009), Family as failure? The role of informal help-givers to disabled people in Sweden, „Scandinavian Journal of Disability Research”, 11(1): 35–49.
Jörgensen S., Costa Andersson M.V., Lexell J. (2020), Changes in health-related quality of life among older adults aging with long-term spinal cord injury, „Spinal Cord”, 59: 1–8.
Jörgensen S., Iwarsson S., Lexell J. (2017), Secondary Health Conditions, Activity Limitations, and Life Satisfaction in Older Adults With Long-Term Spinal Cord Injury, „PM & R: The Journal of Injury, Function, and Rehabilitation”, 9(4): 356–366.
Jörgensen S., Iwarsson S., Norin L., Lexell J. (2016), The Swedish Aging With Spinal Cord Injury Study (SASCIS): Methodology and Initial Results, „PM & R: The Journal of Injury, Function, and Rehabilitation”, 8(7): 667–677.
Kemp B.J., Adkins R., Thompson L. (2004), Aging with a Spinal Cord Injury: What Recent Research Shows, „Topics in Spinal Cord Injury Rehabilitation”, 10(2): 175–197.
Kinne S. (2008), Distribution of secondary medical problems, impairments, and participation limitations among adults with disabilities and their relationship to health and other outcomes, „Disability and Health Journal”, 1(1): 42–50.
Kinne S., Patrick D.L., Doyle D.L. (2004), Prevalence of Secondary Conditions Among People With Disabilities, „American Journal of Public Health”, 94(3): 443–445.
Klingbeil H., Baer H.R., Wilson P.E. (2004), Aging with a disability, „Archives of Physical Medicine and Rehabilitation”, 85(7 Suppl 3): 74–75.
Koon L.M., Remillard E.T., Mitzner T.L., Rogers W.A. (2020), Aging Concerns, Challenges, and Everyday Solution Strategies (ACCESS) for adults aging with a long-term mobility disability, „Disability and Health Journal”, 13(4): 100–936.
Krause J.S. (2010), Aging, Life Satisfaction, and Self-reported Problems Among Participants with Spinal Cord Injury, „Topics in Spinal Cord Injury Rehabilitation”, 15(3): 34–40.
Krause J.S., Clark J.M.R., Saunders L.L. (2015), SCI Longitudinal Aging Study: 40 Years of Research, „Topics in Spinal Cord Injury Rehabilitation”, 21(3): 189–200.
Lammertse D. (2001), Maintaining Health Long-Term with Spinal Cord Injury, „Topics in Spinal Cord Injury Rehabilitation”, 6(3): 1–21.
LaPlante M.P. (2014), Key goals and indicators for successful aging of adults with early-onset disability, „Disability and Health Journal”, 7(1 Suppl): S44-50.
Livneh H., Martz E. (2014), Coping strategies and resources as predictors of psychosocial adaptation among people with spinal cord injury, „Rehabilitation Psychology”, 59(3): 329–339.
Livneh H., Martz E. (2016), Psychosocial Adaptation to Disability Within the Context of Positive Psychology: Philosophical Aspects and Historical Roots, „Journal of Occupational Rehabilitation”, 26(1): 13–19.
Livneh H., McMahon B.T., Rumrill Jr. P.D. (2019), The Duality of Human Experience: Perspectives From Psychosocial Adaptation to Chronic Illness and Disability – Historical Views and Theoretical Models, „Rehabilitation Counseling Bulletin”, 62(2): 67–77.
Marge M. (2008), Secondary conditions revisited: Examining the expansion of the original concept and definition, „Disability and Health Journal”, 1(2): 67–70.
Marmot M., Allen J., Bell R., Bloomer E., Goldblatt P. (2012), WHO European review of social determinants of health and the health divide, „Lancet”, 380(9846): 1011–1029.
Molton I.R., Terrill A.L., Smith A.E., Yorkston K.M., Alschuler K.N., Ehde D.M., Jensen M.P. (2014), Modeling Secondary Health Conditions in Adults Aging With Physical Disability, „Journal of Aging and Health”, 26(3): 335–359.
Molton I.R., Yorkston K.M. (2017), Growing Older With a Physical Disability: A Special Application of the Successful Aging Paradigm, „The Journals of Gerontology. Series B, Psychological Sciences and Social Sciences”, 72(2): 290–299.
Monahan D.J., Wolf D.A. (2014), The continuum of disability over the lifespan: The convergence of aging with disability and aging into disability, „Disability and Health Journal”, 7(1 Suppl): 1–3.
Moos R.H., Brennan P.L., Schutte K.K., Moos B.S. (2006), Older Adults’ Coping with Negative Life Events: Common Processes of Managing Health, Interpersonal, and Financial/Work Stressors, „The International Journal of Aging and Human Development”, 62(1): 39–59.
Munn Z., Peters M.D.J., Stern C., Tufanaru C., McArthur A., Aromataris E. (2018), Systematic review or scoping review? Guidance for authors when choosing between a systematic or scoping review approach, „BMC Medical Research Methodology”, 18(1): 143.
Peter C., Müller R., Cieza A., Geyh S. (2012), Psychological resources in spinal cord injury: A systematic literature review, „Spinal Cord”, 50(3): 188–201.
Pilusa S., Myezwa H., Potterton J. (2019), Prevention care for secondary health conditions among people living with spinal cord injuries: Research protocol, „BMC Research Notes”, 12(1) 179.
Post M.W.M., Reinhardt J.D. (2015), Participation and Life Satisfaction in Aged People with Spinal Cord Injury: Does Age at Onset Make a Difference?, „Topics in Spinal Cord Injury Rehabilitation”, 21(3): 233–240.
Potter P.J., Wolfe D.L., Burkell J.A., Hayes K.C. (2004), Challenges in Educating Individuals with SCI to Reduce Secondary Conditions, „Topics in Spinal Cord Injury Rehabilitation”, 10(1): 30–40.
Putnam M., Molton I.R., Truitt A.R., Smith A.E., Jensen M.P. (2016), Measures of aging with disability in U.S. secondary data sets: Results of a scoping review, „Disability and Health Journal”, 9(1): 5–10.
Remillard E.T., Griffiths P.C., Mitzner T.L., Sanford J.A., Jones B.D., Rogers W.A. (2020), The TechSAge Minimum Battery: A multidimensional and holistic assessment of individuals aging with long-term disabilities, „Disability and Health Journal”, 13(3): 100884.
Rimmer J.H., Chen M.-D., Hsieh K. (2011), A conceptual model for identifying, preventing, and managing secondary conditions in people with disabilities, „Physical Therapy”, 91(12): 1728–1739.
Rowe J.W., Kahn R.L. (1997), Successful Aging, „The Gerontologist”, 37(4): 433–440.
Smith A.E., Molton I.R., Jensen M.P. (2016), Self-reported incidence and age of onset of chronic comorbid medical conditions in adults aging with long-term physical disability, „Disability and Health Journal”, 9(3): 533–538.
Sowa A., Tobiasz-Adamczyk B., Topór-Mądry R., Poscia A., la Milia D.I. (2016), Predictors of healthy ageing: Public health policy targets, „BMC Health Services Research”, 16(Suppl 5): 441–453.
Steuden S. (2011), Psychologia starzenia się i starości, Wydawnictwo Naukowe PWN, Warszawa.
The Future of Disability in America (2007), M.J. Field, A.M. Jette (red.), National Academies Press, Washington.
Thompson L., Yakura J. (2001), Aging Related Functional Changes in Persons with Spinal Cord Injury, „Topics in Spinal Cord Injury Rehabilitation”, 6(3): 69–82.
Turk M.A. (2006), Secondary conditions and disability [w:] Workshop on Disability in America: A New Look, M.J.
Field, A.M. Jette, L. Martin (red.), Institute of Medicine, The National Academies Press, Waszyngton, 185–193.
van der Woude L.H.V., de Groot S., Postema K., Bussmann J.B.J., Janssen T.W.J., Allrisc, Post M.W.M. (2013), Active LifestyLe Rehabilitation interventions in aging spinal cord injury (ALLRISC): A multicentre research program, „Disability and Rehabilitation”, 35(13): 1097–1103.
Verbrugge L.M., Yang L. (2002), Aging with Disability and Disability with Aging, „Journal of Disability Policy Studies”, 12(4): 253–267.
Washko M.M., Campbell M., Tilly J. (2012), Accelerating the translation of research into practice in long term services and supports: A critical need for federal infrastructure at the nexus of aging and disability, „Journal of Gerontological Social Work”, 55(2): 112–125.
Westwood S., Carey N. (2018), Ageing with physical disabilities and/or long-term health conditions [w:] Ageing, Diversity and Equality: Social Justice Perspectives, S. Westwood (red.), Routledge, Londyn.
Whitaker A., Jeppsson-Grassman E. (2013), Living and ageing with disability: Summary and conclusion [w:] Ageing with Disability: A Lifecourse Perspective, E. Jeppsson-Grassman, A. Whitaker (red.), Policy Press, Bristol.
WHO (2001), Międzynarodowa Klasyfikacja Funkcjonowania, Niepełnosprawności i Zdrowia, Światowa Organizacja Zdrowia.
Widerström-Noga E., Finlayson M.L. (2010), Aging with a disability: Physical impairment, pain, and fatigue, „Physical Medicine and Rehabilitation Clinics of North America”, 21(2): 321–337.
Zarb G. (1993), ‘Forgotton But Not Gone’: The experience of ageing with a disability, [w:] Ageing, Independence and the Life Course, S. Arber, M. Evandrou (red.), Jessica Kingsley Publishers, London.
