„My Son Has Autism”. An Analysis of a Father’s Narrative

Authors

  • Anida Szafrańska University of Silesia in Katowice

Keywords:

autism spectrum disorders, a child with autism spectrum disorders, parents of a child on the autism spectrum, fatherhood, experiences from fatherhood, experiences of a father with a child on the autism spectrum

Abstract

Fatherhood is an important event in a man’s life. As an experience, it can be incredibly rewarding and developing but also stressful, especially when it involves a child with a developmental disability. Research shows that the effects of having a child with ASD – like the disorder itself – are multifaceted, complex, and debilitating in all areas where parents and family function. Recent years have brought increased interest in the experiences that fathers have when raising children with autism spectrum disorders. The number of studies conducted in both quantitative and qualitative paradigms is increasing. Fathers are becoming increasingly involved in the care and upbringing of their children which allows them to better understand their children’s needs and abilities. This article is a report on a study that aimed to explore the experiences of a father who has a child with ASD.

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References

Burrell A., Ives J., Uwin G. (2017), The Experiences of Fathers Who Have Offspring with Autism Spectrum Disorder, Journal of Autism and Developmental Disorders, 47: 1135–1147.

Corcoran J, Berry A, Hill S. (2015), The lived experience of US parents of children with autism spectrum disorders: a systematic review and meta-synthesis, Journal of Intellectual Disabilities, 19(4): 356–366.

DePape A.M., Lindsay S. (2015), Parents' experiences of caring for a child with autism spectrum disorder, Qualitative Health Research, 25(4): 569–583.

Gosztyła T. (2017), Ojcowie dzieci z autyzmem w relacjach rodzinnych i terapeutycznych, Głos – Język – Komunikacja, t. 4: 31–39.

Gudkova S. (2012), Wywiad w badaniach jakościowych [w:] Badania jakościowe. Metody i narzędzia, red. D. Jemielniak, Wydawnictwo Naukowe PWN, Warszawa.

Knoll N., Schwarzer R. (2004) Prawdziwych przyjaciół … Wsparcie społeczne, stres, choroba i śmierć [w:] Wsparcie społeczne, stres i zdrowie, red. H. Sęk, R. Cieślak, Wydawnictwo Naukowe PWN, Warszawa.

Konecki K. (2000), Studia z metodologii badań jakościowych: teoria ugruntowana, Wydawnictwo Naukowe PWN, Warszawa.

Lashewicz B.M., Shipton L., Lien K. (2019), Meta – synthesis of fathers’ experiences raising children on the autism spectrum, Journal of Intellectual Disabilities, 23(1): 117–131, https://journals.sagepub.com/doi/pdf/10.1177/1744629517719347 (dostęp: 22.04.2021).

Meadan H., Stoner J.B. Angell M. E. (2015), Fathers of children with autism: perceived roles, responsibilities, and support needs, Early Child Development and Care, 185, 10: 1678–1694.

Paynter J., Davies M., Beamish W. (2018), Recognising the “forgotten man”: Fathers’ experiences in caring for a young child with autism spectrum disorder, Journal of Intellectual & Developmental Disability, 43, 1: 112–124.

Pisula E. (2015), Rodzice dzieci z autyzmem, Wydawnictwo Naukowe PWN, Warszawa.

Pisula E., Banasiak A. (2020), Empawerment in Polish fathers of children with autism and Down syndrome: the role of social support and coping with stress – a preliminary repport, Journal of Intellectual Disability Research, 64, 6: 434–441.

Płatos M. (red) (2016), Ogólnopolski spis autyzmu. Sytuacja młodzieży i dorosłych z autyzmem w Polsce, Warszawa.

Potter C.A. (2016), I accept my son for who he is - he has incredible character and personality. Fathers’ positive experiences of parenting children with autism, Disability and Society, 31(7): 948–965, https://1library.net/document/yjdx8k6y-incredible-character-personality-fathers-positive-experiences-parenting-children.html (dostęp: 26.04.2021).

Potter C.A. (2017), Father involvement in the care, play, and education of children with autism, Journal of Intellectual & Developmental Disability, 42, 4: 375–384.

Prokopiak A. (2014), Wychowanie dziecka z zaburzeniami ze spektrum autyzmu, Annales Universitatis Marie Curie Skłodowska, 27, 2: 51–59.

Rafferty D., Tidman L., Ekas N. V. (2020), Parenting experiences of fathers of children with autism spectrum disorder with or without intellectual disability, Journal of Intellectual Disability Research, 64. 6: 463–474.

Raport JiM. Sytuacja młodzieży i osób dorosłych z całościowymi zaburzeniami rozwoju w Polsce (2017), Fundacja JiM, Autyzm Help.

Sęk H. (2004), Rola wsparcia społecznego w sytuacjach stresu życiowego. O dopasowaniu wsparcia do wydarzeń stresowych [w:] Wsparcie społeczne, stres i zdrowie, red. H. Sęk, R. Cieślak, Wydawnictwo Naukowe PWN, Warszawa.

Shattuck P.T., Narendorf S.C., Cooper B., Sterzing P.R., Wagner M., Taylor J.L. (2012), Postsecondary Education and Employment Among Youth With an Autism Spectrum Disorder, Pediatrics, 129(6): 1042–1049.

Szmania L. (2014), Doświadczenia emocjonalne rodziców dzieci z autyzmem, Interdyscyplinarne Konteksty Pedagogiki Specjalnej, 5: 69–91.

Taylor J.L., Seltzer M.M. (2010), Employment and Post-Secondary Educational Activities for Young Adults with Autism Spectrum Disorders During the Transition to Adulthood, Journal of Autism & Developmental Disorders, 4: 566–574.

Wyka A. (1993), Badacz społeczny wobec doświadczenia, Wydawnictwo Instytutu Filozofii i Socjologii PAN, Warszawa.

Published

2021-12-09

How to Cite

Szafrańska, A. (2021). „My Son Has Autism”. An Analysis of a Father’s Narrative. Disability , (42), 112–128. Retrieved from https://czasopisma.bg.ug.edu.pl/index.php/niepelnosprawnosc/article/view/6362

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Section

Artykuły