Positive changes in perception of mothers of children with disability – structure and determinants

Authors

  • Stanisława Byra UMCS in Lublin
  • Monika Parchomiuk UMCS in Lublin

Keywords:

posttraumatic growth, mothers of children with disability, involvement in growth process/growth initiative, basic hope, self-efficacy

Abstract

The article presents the results of own research on posttraumatic growth of mothers of children with disabilities. In the analyzes, the structure of this growth was defined in its basic areas, such as changes in self-perception, relationships with others, appreciation of life and the spiritual changes. Also checked the relationship between growth (in the general and specific areas) and the involvement in the growth process, including confidence in making changes, planning and realizing goals, striving for life balance, searching for new opportunities. Analyzing the character of the relationship between growth and growth initiative (involvement), the moderating variables – basic hope and self-efficacy were examined. 102 mothers of children with intellectual disability, autism spectrum disorders and with mobility impairment participated in the research. The following tools were used: The Post-traumatic Growth Inventory, Kwestionariusz Nadziei Podstawowej BHI-12, Skala Uogólnionej Własnej Skutecznooeci, Skala Zaangażowania w Proces Osobistego Wzrastania. Significant positive correlations of growth in its general dimension and some areas with selected involvement indicators have been shown, as well as the predictive contribution of some involvement indicators in determining the growth process. The moderating role of basic hope and self-efficacy in shaping the relationship between involvement in the growth process and positive changes in mothers of children with disability was confirmed.

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References

Bandura A. (1977), Self-efficacy: toward a unifing theory of behavioral change, „Psychological Review”, vol. 84(2), s. 191–215.

Bandura A. (1991), Human agency: the rhetoric and the reality, „American Psychologist”, vol. 46(2), s.157–162.

Bayat M. (2007), Evidence of resilience in families of children with autism, „Journal of Intellectual Disability Research”, vol. 51(9), s. 702–714.

Byra S. (2016), Posttraumatic growth in people with traumatic long-term spinal cord injury: predictive role of basic hope and coping, „Spinal Cord”, vol. 54, s. 478–482.

Carona C., Pereira M., Moreira H., Silva N., Canavarro M.C. (2013), The disability paradox revisited: quality of life and family caregiving in pediatric cerebral palsy, „Journal of Child and Family Studies”, vol. 223, s. 971–986.

Caruso N. (b.r.w), „It’s been a good journey overall”. A qualitative investigation into posttraumatic growth in mothers of children with Autism Spectrum Disorder. Research raport, http://www.autismsa.org.au/Media/Default/Research%20Documents/3%20%20COPY%20OF%20FINAL%20REPORT.pdf [dostęp: 10.04.2017].

Counselman-Carpenter E.A. (2016), The presence of posttraumatic growth (PTG) in mothers whose children are born unexpectedly with Down syndrome, „Journal of Intellectual and Developmental Disability”.

Crown N.J. (2009), Parenting a child with disabilities: personal reflections, „Journal of Infant, Child, and Adolescent Psychotherapy”, vol. 8(1), s. 70–82.

Delle Fave A., Fianco A., Sartori R.D.G. (2015), Psychological and relational resources in the experience of disability and caregiving [w:] Positive psychology in practice: promoting human flourishing in work, health, education, and everyday life, ed. by Stephen Joseph, John Wiley & Sons Inc., http://onlinelibrary.wiley.com/doi/10.1002/9781118996874.ch36/pdf [dostęp: 16.04.2017].

Glidden L.M., Natcher A.L. (2009), Coping strategy use, personality, and adjustment of parents rearing children with developmental disabilities, „Journal of Intellectual Disability Research”, vol. 53(12), s. 998–1013.

Green S.E. (2007), „We’re tired, not sad”: Benefits and burdens of mothering a child with a disability, „Social Science and Medicine”, vol. 64, s. 150–163.

Greer F.A., Grey I.M., McClean B. (2006), Coping and positive perceptions in Irish mothers of children with intellectual disabilities, „Journal of Intellectual Disabilities”, vol. 10(3), s. 231–248.

Hastings R.P., Taunt H. (2002), Positive perceptions in families of children with developmental disabilities, „American Journal on Mental Retardation”, vol. 107(2), s. 116–127.

Hornby G. (1992), A review of fathers’ accounts of their experiences of parenting children with disabilities, „Disability, Handicap and Society”, vol. 7(4), s. 363–373.

Hullmann S.E., Fedele D.A., Molzon E.S., Mayes S., Mullins L.L. (2014), Posttraumatic growth and hope in parents of children with cancer, „Journal of Psychosocial Oncology”, vol. 32(6), s. 696–707.

Jayawickreme E., Blackie L.E. (2014), Post-traumatic growth as positive personality change: evidence, controversies and future directions, „European Journal of Personality”, vol. 28, s. 312–331.

Juczyński Z. (2001), Narzędzia pomiaru w promocji i psychologii zdrowia, PTP, Warszawa.

Konrad S.C. (2006), Posttraumatic growth in mothers of children with acquired disabilities, „Journal of Loss and Trauma”, vol. 11, s. 101–113.

Lee Y-J. Park H.J., Recchia S.J. (2015), Embracing each other and growing together: redefining the meaning of caregiving a child with disabilities, „Journal of Child and Family Studies”, vol. 24, s. 3662–3675.

Mitchell J.L., Lashewicz B. (2016), Generative fathering: a framework for enriching understandings of fathers raising children who have disability diagnoses, „Journal of Family Studies”, s. 1-15.

Motaghedi S., Haddadian M. (2014), The effect of growth appraisal & individual assessment of stress on mental health of autistic children’s parents, „Life Science Journal”, vol. 11, s. 32–37.

Ogińska-Bulik N. (2013), Pozytywne skutki doświadczeń traumatycznych, czyli kiedy łzy zamieniają się w perły, Difin, Warszawa.

Ogińska-Bulik N., Ciechomska M. (2016), Wzrost po traumie u rodziców zmagających się z chorobą nowotworową dziecka – rola luminacji, „Postępy Psychiatrii i Neurologii”, vol. 25, s. 99–110.

Ogińska-Bulik N., Juczyński Z. (2010), Rozwój potraumatyczny – charakterystyka i pomiar, „Psychiatria”, vol. 7(4), s. 129–142.

Pakenham K.I., Sofronoff K., Samios C. (2004), Finding meaning in parenting a child with Asperger syndrome: correlates of meaning sense and benefit finding, „Research in Developmental Disabilities”, vol. 25, s. 245–264.

Park H.J., Chung G.H. (2015), Multifaceted model of changes and adaptation among Korean mothers of children with disabilities, „Journal of Child and Family Studies”, vol. 24, s. 915–929.

Patric-Ott A., Ladd L.D. (2010), The blending of Boss’s concept of ambiguous loss and Olshansky’s concept of chronic sorrow: a case study of a family with a child who has significant disabilities, „Journal of Creativity in Mental Health”, vol. 5, s. 73–86.

Pryce L., Tweed A., Hilton A., Priest H.M. (2015), Tolerating uncertainty: perceptions of the future for ageing parent carers and their adult children with intellectual disabilities, „Journal of Applied Research in Intellectual Disabilities”, s. 84–96.

Robitschek C. (1998), Personal growth initiative: the construct and its measure, „Measurement mand Evaluation in Counseling and Development”, vol. 30(4), s. 183–198.

Robitschek C., Cook S.W. (1999), The influence of personal growth initiative and coping styles on career exploration and vocational identity, „Journal of Vocational Behavior”, vol. 54, s. 127–141.

Scorgie K., Wilgosh L., Sobsey D. (2004), The experience of transformation in parents of children with disabilities: theoretical considerations, „Developmental Disabilities Bulletin”, vol. 32(1), s. 84–110.

Shigemoto Y., Ashton M.W., Robitschek C. (2016), Predictors of growth in the aftermath of traumatic events: the role of personal growth initiative, „Journal of Loss and Trauma”, vol. 21(5), s. 399–409.

Shorey H.S., Little T.D., Snyder C.R., Kluck B., Robitschek C. (2007), Hope and personal growth initiative: a comparison of positive, future-oriented construct, „Personality and Individual Differences”, vol. 43, s. 1917–1926.

Slosky L. (2013), Primary caregivers of children with Williams syndrome: posttraumatic growth and related health outcomes. A dissertation submitted in partial fulfillment of the requirements for the degree of Doctor of Philosophy at Virginia Commonwealth University, Virginia Commonwealth University Richmond, Virginia, http://scholarscompass.vcu.edu/cgi/viewcontent.cgi?article=3971&context=etd [dostęp: 10.04.2017].

Smith A.A. (2016), Relationships between parental self-efficacy and posttraumatic growth in Mothers of children with Down Syndrome. Theses and Dissertations—Educational, School, and Counseling Psychology. Paper 43, http://uknowledge.uky.edu/edp_etds/43 [dostęp: 10.04.2017].

Stainton T., Besser H. (2008), The positive impact of children with an intellectual disability on the family, „Journal of Intellectual and Developmental Disability”, vol. 23(1), s. 57–70.

Strecker S., Hazelwood Z.J., Shakespeare-Finch J. (2014), Postdiagnosis personal growth in an Australian population of parents raising children with developmental disability, „Journal of Intellectual and Developmental Disability”, vol. 39(1), s. 1–9.

Takataya K., Yamazaki Y., Mizuno E. (2016), Perceptions and feelings of fathers of children with Down Syndrome, „Archives of Psychiatric Nursing”, vol. 30, s. 544–551.

Tedeschi R.G., Calhoun L.G. (1996), The Posttraumatic Growth Inventory: measuring the positive legacy of trauma, „Journal of Traumatic Stress”, vol. 9(2), s. 456–471.

Tedeschi R.G., Calhoun L.G. (2004), Posttraumatic growth: conceptual foundations and empirical evidence, „Psychological Inquiry”, vol. 15(1), s. 1–18.

Tedeschi R.G., Calhoun L.G. (2006), The foundations of posttraumatic growth: an expanded framework, In Calhoun, L.G., Tedeschi, R.G. (Ed.), Posttraumatic growth: Research and practice (s. 3–23), Mahwah, NJ, Lawrence Erlbaum.

Trzebiński J., Zięba M. (2003a), Nadzieja, strata i rozwój, „Psychologia Jakości Życia”, nr 1, s. 5–33.

Trzebiński J., Zięba M. (2003b), Kwestionariusz Nadziei Podstawowej – BHI- 12. Podręcznik, PTP, Warszawa.

Turner-Sack A., Menna R., Setchell S.R., Maan C., Cataudella D. (2015), Psychological functioning, post-traumatic growth, and coping in parents and siblings of adolescent cancer survivors, „Oncology Nursing Forum”, vol. 43(1), s. 48–56.

Zdankiewicz-Ścigała E. (2009), Nadzieja podstawowa jako moderator procesu adaptacji po traumie [w:] Konsekwencje psychiczne traumy, Wydawnictwo Naukowe Scholar, Warszawa, s. 132–153.

Zhang W., Yan T., Barriball K.L., While A.E., Hong Liu X. (2015), Post-traumatic growth in mothers of children with autism: a phenomenological study, „Autism”, vol. 19(1), s. 29–37.

Zhang W., Yan T., Du Y, Liu X. (2013), Relationship between coping, rumination and posttraumatic growth in mothers of children with autism spectrum disorders, „Research in Autism Spectrum Disorders”, vol. 7, s. 1204–1210.

Znoj H.J. (1999), European and American perspectives on posttraumatic growth: a model of personal growth. life challenges and transformation following loss and physical handicap, Paper presented at the Annual Convention of the American Psychological Association (107th, Boston, MA, August 20–24), http://files.eric.ed.gov/fulltext/ED435886.pdf [dostęp: 18.04.2017].

Published

2018-09-05

How to Cite

Byra, S., & Parchomiuk, M. (2018). Positive changes in perception of mothers of children with disability – structure and determinants. Disability , (30), 324–342. Retrieved from https://czasopisma.bg.ug.edu.pl/index.php/niepelnosprawnosc/article/view/8512